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Marie Gabe-Walters

National Research and Innovation Lymphoedema Specialist Lymphoedema Network Wales, Cimla Health & Social Care Centre, Cimla, Neath

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Challenges involved in collecting and analysing the reported experiences of patients with lymphoedema

An initial challenge for LW was identifying a suitable PREM. Several reviews caution the interpretation of PREMs, discussing the influence of preconceived expectations, a lack of robust validation...

Development of the Lymphoedema Patient Reported Outcome Measure (LYMPROM)

Historically, PROMs were collected by lymphoedema services using the All-Wales Lymphoedema and Lymphatic Venous Anastomosis Assessment and Review forms. The pool of relevant PROMs was first identified...

The education needs of health professionals conservatively managing genital oedema: UK survey findings

The aim was to identify the education needs of health professionals in order to manage chronic genital oedema (lymphoedema) conservatively, and establish the medium of education delivery that most...

Challenges and opportunities identified for lymphoedema services in Wales during the COVID-19 pandemic

Initial scoping of staff perceptions regarding the impact of the pandemic on services, patients and roles as well as the acceptability of study method shaped the study. Four scoping questions were...

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