References

Abhang PA, Gawali BW, Mehrotra SC. Introduction to EEG- and speech-based emotion recognition.London: Elsevier; 2016

Baker A, Spector S, McGrath Y, Soteriou H. Impact of epilepsy in adolescence: a UK controlled study. Epilepsy Behav. 2005; 6:(4)556-562 https://doi.org/10.1016/j.yebeh.2005.03.011

Bilgiç A, Işik Ü, Derin H, Çolak Sivri R, Çaksen H. Psychiatric symptomatology and health-related quality of life in children with epilepsy. European Psychiatry. 2017; 41:(1)S231-S232 https://doi.org/10.1016/j.eurpsy.2017.01.2241

Carmassi C, Corsi M, Gesi C Full and partial DSM-5 PTSD in parents of children with epilepsy: exploring gender differences. European Psychiatry. 2017; 41:(1) https://doi.org/10.1016/j.eurpsy.2017.01.1307

Clore ET. Seizure precautions for pediatric bedside nurses. Pediatr Nurs.. 2010; 36:(4)191-194

D'Ambrosio R, Miller J W. What is an epileptic seizure? Unifying definitions in clinical practice and animal research to develop novel treatments. Epilepsy Curr.. 2010; 10:(3)61-66 https://doi.org/10.1111/j.1535-7511.2010.01358.x

Epilepsy Action. About epilepsy. 2019. https://www.epilepsy.org.uk/info/about (accessed 17 September 2019)

Great Ormond Street Hospital for Children NHS Foundation Trust. Buccal midazolam. 2017. https://tinyurl.com/y2pxa7oy (accessed 16 September 2019)

International League Against Epilepsy. Instruction manual for the operational classification of seizure types. 2017. https://tinyurl.com/y4vzbptf (accessed 16 September 2019)

Jacoby A, Austin JK. Social stigma for adults and children with epilepsy. Epilepsia. 2007; 48:6-9 https://doi.org/10.1111/j.1528-1167.2007.01391.x

Kwan P, Brody MJ. Definition of refractory epilepsy: defining the indefinable?. Lancet Neurol.. 2010; 9:(1)27-29 https://doi.org/10.1016/S1474-4422(09)70304-7

Lambert V, Gallagher P, O'Toole S, Benson A. Stigmatising feelings and disclosure apprehension among children with epilepsy. Nurs Child and Young People. 2014; 26:(6)22-26 https://doi.org/10.7748/ncyp.26.6.22.e440

Meeraus WH, Petersen I, Chin RF, Knott F, Gilbert R. Childhood epilepsy recorded in primary care in the UK. Arch Dis Child. 2013; 98:(3)195-202 https://doi.org/10.1136/archdischild-2012-302237

National Institute for Health and Care Excellence. Epilepsy in children and young people. 2013. http://www.nice.org.uk/guidance/qs27 (accessed 16 September 2019)

National Institute for Health and Care Excellence. Epilepsies: diagnosis and management. CG137. 2018. http://www.nice.org.uk/guidance/cg137 (accessed 16 September 2019)

Patel N, Ram D, Swiderska N, Mewasingh LD, Newton RW, Offringa M. Febrile seizures. BMJ.. 2015; 351 https://doi.org/10.1136/bmj.h4240

Specialist nursing of children and young people with epilepsy.London: RCN; 2015

Royal College of Paediatrics and Child Health Epilepsy passport. 2015. https://tinyurl.com/epilepsy-passport (accessed 16 September 2019)

Schulze-Bonhage A, Kurth C, Carius A, Steinhoff BJ, Mayer T. Seizure anticipation by patients with focal and generalized epilepsy: a multicentre assessment of premonitory symptoms. Epilepsy Res.. 2006; 70:(1)83-88 https://doi.org/10.1016/j.eplepsyres.2006.02.001

Shields L, Zhou H, Taylor M, Hunter J, Munns A, Watts R. Family-centred care for hospitalised children aged 0-12 years: a systematic review of quasi-experimental studies. JBI Libr Syst Rev.. 2012; 10:(39)2559-2592 https://doi.org/10.11124/jbisrir-2012-32

Shore CP, Buelow JM, Austin JK, Johnson CS. Continuing psychosocial care needs in children with new-onset epilepsy and their parents. J Neurosci Nurs.. 2009; 41:(5)244-250 https://doi.org/10.1097/JNN.0b013e3181b2c721

Shorvon S, D. The causes of epilepsy: changing concepts of etiology of epilepsy over the past 150 years. Epilepsia. 2011; 52:(6)1033-1044 https://doi.org/ 10.1111/j.1528-1167.2011.03051.x

The causes of epilepsy: common and uncommon causes in adults and children, 2nd edn. In: Shorvon S, Guerrini R, Schachter S, Trinka E (eds). Cambridge: Cambridge University Press; 2019

Uldall P, Alving J, Hansen LK, Kibæk M, Buchholt J. The misdiagnosis of epilepsy in children admitted to a tertiary epilepsy centre with paroxysmal events. Arch Dis Child. 2006; 91:(3)219-221 https://doi.org/10.1136/adc.2004.064477

An introduction to nursing children and young people with epilepsy

26 September 2019
Volume 28 · Issue 17

Epilepsy is a condition that affects the brain and is defined as a tendency to have unprovoked seizures (Kwan and Brody, 2010; Epilepsy Action, 2019). It is possible for an individual to have an isolated seizure without having epilepsy. A diagnosis of the condition will usually be made only if someone has had more than one seizure and the medical team considers that the person will have more (National Institute for Health and Care Excellence (NICE), 2018). Epilepsy can start at any age and varies from a condition that lasts a set period to one that can be lifelong (Kwan and Brody, 2010).

It is one of the most common neurological conditions (Meeraus et al, 2013) (Box 1), commonly diagnosed in childhood (Kwan and Brody, 2010), which affects around 50 million people worldwide. In some cases, the cause for the condition will remain unknown; however, there are some known reasons: stroke, head injury, infection such as encephalitis, or problems during birth (Shorvon, 2011; NICE, 2018). There remains discussion regarding the possibility of epilepsy being hereditary (Shorvon, 2011).

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