References

ASCN stoma care national clinical guidelines. 2016. https://tinyurl.com/y22z45rb (accessed 27 August 2019)

Black P. Holistic stoma care.London: Ballière Tindall; 2000

Black P. Managing physical post-operative stoma complication. Br J Nurs. 2009; 18:S4-S10 https://doi.org/10.12968/bjon.2009.18.Sup6.44169

Borwell B. Continuity of care for the stoma patient: psychological considerations. Br J Community Nurs. 2009; 14:(8)326-331 https://doi.org/10.12968/bjcn.2009.14.8.43511

Boyles A. Patient outcomes and quality of life following stoma surgery. Gastrointestinal Nursing. 2010; 8:(8)30-35 https://doi.org/10.12968/gasn.2010.8.8.79163

Brown H, Randle J. Living with a stoma: a review of the literature. J Clin Nurs. 2005; 14:(1)74-81 https://doi.org/10.1111/j.1365-2702.2004.00945.x

Burch J. Exploring quality of life for stoma patients living in the community. Br J Community Nurs. 2016; 21:(8)378-382 https://doi.org/10.12968/bjcn.2016.21.8.378

Burch J. Follow-up appointments after stoma formation: a literature review. Gastrointestional Nursing. 2017; 14:(10)26-30 https://doi.org/10.12968/gasn.2016.14.10.26

Claessens I, Probert R, Tielemans C The Ostomy Life Study: the everyday challenges faced by people living with a stoma in a snapshot. Gastrointestinal Nursing. 2015; 13:(5)18-25 https://doi.org/10.12968/gasn.2015.13.5.18

What is a stoma?. 2019. https://tinyurl.com/ybc88b9x (accessed 27 August 2019)

Frohlich DO, Zmyslinski-Seelig AN. How Uncover Ostomy challenges ostomy stigma, and encourages others to do the same. New Media & Society. 2016; 18:(2)220-238 https://doi.org/10.1177/1461444814541943

McKenzie F, White CA, Kendall S, Finlayson A, Urquhart M, Williams I. Psychological impact of colostomy pouch change and disposal. Br J Nurs. 2006; 15:(6)308-316 https://doi.org/10.12968/bjon.2006.15.6.20678

Five year forward view. 2014. http://tinyurl.com/oxq92je (accessed 27 August 2019)

The code: professional standards of practice and behaviour for nurses, midwives and nursing associates. 2018. https://tinyurl.com/gozgmtm (accessed 27 August 2019)

Porrett T, McGrath A. Stoma care (essential clinical skills for nurses).Oxford: Wiley-Blackwell; 2005

Riemenschneider K. Uncertainty and adaptation among adults living with incontinent ostomies. J Wound Ostomy Continence Nurs. 2015; 42:(4)361-367 https://doi.org/10.1097/WON.0000000000000132

Wade B. A stoma is for life.London: Scutari Press; 1989

Waller S, Chalmers F, Jowett A, Disley H. Achieving RCN accreditation for SecuriCare stoma clinical nursing standards. Gastrointestinal Nursing. 2009; 7:(1)36-39 https://doi.org/10.12968/gasn.2009.7.1.39372

Exploring individuals' perceptions of living with a stoma

12 September 2019
9 min read
Volume 28 · Issue 16

Abstract

Angie Perrin, Clinical Lead for Innovation, Salts Healthcare, angie.perrin@salts.co.uk, discusses findings from interviews and surveys regarding ostomists' attitudes to their stoma, adjusting to their new reality, and product choice

The NHS Five-Year Forward View (NHS England, 2014) set out how the health service needed to change, and emphasised a more engaged relationship with patients, carers and citizens in order to promote wellbeing and prevent ill health. As nurses, we are instrumental in facilitating ownership and responsibility for health, as well as promoting and enhancing an individual's wellbeing or quality of life.

Stoma formation is often the result of a major health concern, recent diagnosis or prolonged illness. For many people, having a stoma formed can significantly affect their quality of life (Burch, 2016). There are approximately 120 000 people in the UK with a stoma—that is equivalent to 1 in every 500 people living in the UK (Colostomy UK, 2019). The most common types of stomas are colostomy, ileostomy and urostomy.

Much has been written about the effects on quality of life following stoma formation. A good or acceptable quality of life will be different for every individual and is defined in the Encyclopaedia Britannia as the degree to which an individual is healthy, comfortable, and able to participate in or enjoy life events—such events may include work, hobbies or socialising. Boyles (2010) suggested that, regardless of the reason for stoma formation, the creation of the stoma has a multi-faceted impact on patients and the way they lead their lives. In the Association of Stoma Care Nurses (ASCN) stoma care guidelines (ASCN, 2016) one of the key facts stated is that patients with a stoma may develop complications that are debilitating and life-changing.

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