Helping patients live well with a stoma for inflammatory bowel disease: directions for future research
In the UK, approximately 21 000 people undergo intestinal stoma surgery each year for bowel cancer, abdominal trauma, neurogenic bowel due to spinal injury, and inflammatory bowel disease (IBD)(Beeken et al, 2019). Population health demographics are changing; on average, people live longer and enter middle and older age with at least one chronic condition (Barnett et al, 2012; Department of Health (DH), 2012). Survival needs to be accompanied by good quality of life (QoL) (Davis et al, 2017).
Lifesaving and symptom-improving stoma surgery improves QoL for many (Camilleri-Brennan et al, 2003; Silva et al, 2003; Umanskiy and Fichera, 2010; Kuruvilla et al, 2012), but can also contribute to a disease-related burden of distress (Dibley et al, 2018a), which may be compounded in individuals who find change difficult.
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