References

Becker CA, Wright G, Schmit K. Perceptions of dying well and distressing death by acute care nurses. Appl Nurs Res. 2017; 33:149-154 https://doi.org/10.1016/j.apnr.2016.11.006

Bergenholtz H, Jarlbaek L, Hølge-Hazelton B. Generalist palliative care in hospital – cultural and organisational interactions. Results of a mixed-methods study. Palliat Med. 2016; 30:(6)558-566 https://doi.org/10.1177/0269216315619861

Brown B. Men in nursing: re-evaluating masculinities, re-evaluating gender. Contemp Nurse. 2009; 33:(2)120-129 https://doi.org/10.5172/conu.2009.33.2.120

Costello J. Dying well: nurses' experiences of ‘good and bad’ deaths in hospital. J Adv Nurs. 2006; 54:(5)594-601 https://doi.org/10.1111/j.1365-2648.2006.03867.x

Dahlborg-Lyckhage E, Lidén E. Competing discourses in palliative care. Support Care Cancer. 2010; 18:(5)573-82 https://doi.org/10.1007/s00520-009-0691-6

Decker K, Lee S, Morphet J. The experiences of emergency nurses in providing end-of-life care to patients in the emergency department. Australas Emerg Nurs J. 2015; 18:(2)68-74 https://doi.org/10.1016/j.aenj.2014.11.001

Florczak KL. Power relations: their embodiment in research. Nurs Sci Q. 2016; 29:(3)192-196 https://doi.org/10.1177/0894318416647167

Froggatt K. The place of metaphor and language in exploring nurses' emotional work. J Adv Nurs. 1998; 28:(2)332-338 https://doi.org/10.1046/j.1365-2648.1998.00688.x

Gauntlett D. Making media studies: the creativity turn in media and communications studies.New York (NY): Peter Lang; 2015

General Medical Council. Treatment and care towards the end of life: good practice in decision making. 2010. https://tinyurl.com/mr3hfp4z (accessed 11 October 2022)

Gott M, Seymour J, Ingleton C, Gardiner C, Bellamy G. ‘That's part of everybody's job’: the perspectives of health care staff in England and New Zealand on the meaning and remit of palliative care. Palliat Med. 2012; 26:(3)232-241 https://doi.org/10.1177/0269216311408993

Gray B. Emotional labour, gender and professional stereotypes of emotional and physical contact, and personal perspectives on the emotional labour of nursing. J Gend Stud. 2010; 19:(4)349-360 https://doi.org/10.1080/09589236.2010.514207

Guillemin M. Understanding illness: using drawings as a research method. Qual Health Res. 2004; 14:(2)272-289 https://doi.org/10.1177/1049732303260445

Guillemin M, Drew S. Questions of process in participant-generated visual methodologies. Visual Studies. 2010; 25:(2)175-188 https://doi.org/10.1080/1472586X.2010.502676

Hawks JH. Power: a concept analysis. J Adv Nurs. 1991; 16:(6)754-762 https://doi.org/10.1111/j.1365-2648.1991.tb01734.x

Hayward RM, Tuckey MR. Emotions in uniform: how nurses regulate emotion at work via emotional boundaries. Human Relations. 2011; 64:(11)1501-1523 https://doi.org/10.1177/0018726711419539

Henderson A. Emotional labor and nursing: an under-appreciated aspect of caring work. Nurs Inq. 2001; 8:(2)130-138 https://doi.org/10.1046/j.1440-1800.2001.00097.x

Holloway I, Biley FC. Being a qualitative researcher. Qual Health Res. 2011; 21:(7)968-975 https://doi.org/10.1177/1049732310395607

Holstein J, Gubrium J. Narrative practice and the active interview, 3rd edn. In: Silverman D (ed). London: Sage; 2011

Hopkinson J, Hallett C. Good death? An exploration of newly qualified nurses' understanding of good death. Int J Palliat Nurs. 2002; 8:(11)532-539 https://doi.org/10.12968/ijpn.2002.8.11.10895

Jootun D, McGhee G, Marland GR. Reflexivity: promoting rigour in qualitative research. Nurs Stand. 2009; 23:(23)42-46 https://doi.org/10.7748/ns2009.02.23.23.42.c6800

Kara H. Creative research methods in the social sciences a practical guide.Bristol: Policy Press, University of Bristol; 2015

Lopez KA, Willis DG. Descriptive versus interpretive phenomenology: their contributions to nursing knowledge. Qual Health Res. 2004; 14:(5)726-735 https://doi.org/10.1177/1049732304263638

Manny D. Visual, narrative and creative research methods: application, reflection and ethics.Abingdon: Routledge; 2016

McMillen RE. End of life decisions: nurses perceptions, feelings and experiences. Intensive Crit Care Nurs. 2008; 24:(4)251-259 https://doi.org/10.1016/j.iccn.2007.11.002

NHS England/NHS Improvement. We are the NHS: people plan for 2020/21 – action for us all. 2020. https://tinyurl.com/y7n5n5f3 (accessed 11 October 2022)

Overbeek A, Van den Block L, Korfage IJ, Penders YWH, van der Heide A, Rietjens JAC. Admissions to inpatient care facilities in the last year of life of community-dwelling older people in Europe. Eur J Public Health. 2017; 27:(5)814-821 https://doi.org/10.1093/eurpub/ckx105

Parliamentary and Health Service Ombudsman. Dying without dignity. 2015. https://tinyurl.com/ycysypj3 (accessed 11 October 2022)

Peters L, Cant R, Payne S How death anxiety impacts nurses' caring for patients at the end of life: a review of literature. Open Nurs J. 2013; 7:14-21 https://doi.org/10.2174/1874434601307010014

Public Health England. Older people who died in hospital: England 2017. 2019. https://tinyurl.com/32frpnbh (accessed 11 October 2022)

Public Health England. Older people's hospital admissions in the last year of life. 2020. https://tinyurl.com/ypkvtyrh (accessed 11 October 2022)

Rao A. The contemporary construction of nurse empowerment. J Nurs Scholarsh. 2012; 44:(4)396-402 https://doi.org/10.1111/j.1547-5069.2012.01473.x

Policy Brief 10: How can health systems respond to population ageing?. 2009. https://tinyurl.com/2p8x5j59 (accessed 11 October 2022)

Ricoeur P. Hermeneutics and the human sciences.Cambridge: Cambridge University Press; 1981

Ricoeur P. Time and narrative. Volume 1.Chicago: University of Chicago Press; 1984

Ricoeur P. Hermeneutics and the human sciences: essays on language, action and interpretation.Cambridge: Cambridge University Press; 2016

Roche-Fahy V, Dowling M. Providing comfort to patients in their palliative care trajectory: experiences of female nurses working in an acute setting. Int J Palliat Nurs. 2009; 15:(3)134-141 https://doi.org/10.12968/ijpn.2009.15.3.41092

Tillich P. Love, power and justice.Oxford: Oxford University Press; 1954

Vaart G, Hoven B, Huigen P. Creative and Arts based research methods in academic research. Lessons from a participatory research project in the Netherlands. Forum: Qualitative Social Research. 2018; 19:(2) https://doi.org/10.17169/fqs-19.2.2961

van Manen M. Phenomenology in its original sense. Qual Health Res. 2017; 27:(6)810-825 https://doi.org/10.1177/1049732317699381

Wengraf T. Qualitative research interviewing.London: Sage; 2001

Willard C, Luker K. Challenges to end of life care in the acute hospital setting. Palliat Med. 2006; 20:(6)611-615 https://doi.org/10.1177/0269216306071064

How do hospital nurses experience end-of-life care provision? A creative phenomenological approach

27 October 2022
Volume 31 · Issue 19

Abstract

Background:

Current evidence suggests that hospital nurses' end-of-life care is complex due to the conflicting tasks of treatment-focused care and palliation. This is a topic that needs further exploration.

Aim:

To understand hospital nurses' experiences of end-of-life care.

Method:

Interpretive phenomenology was used to explore 10 hospital nurses' experiences.

Findings:

Nurses' individual experience of death informed their attitudes to death. The dominant theme was death-as-calm, accompanied by human connection, and death-as-process. The nurses' actions indicated their end-of-life care included love, defined as a desire to create calm, grounded by the virtue of natural goodness, responsibility and dedication, with a willingness to focus on the individual and their family, making the most of whatever time they have left. To continue providing end-of-life care the nurses successfully protected their authentic self by using a ‘professional identity’ and employing ‘defence of self’. The nurses found the unpredictable nature of hospital end-of-life care difficult but used a collaborative power to manage situations.

Conclusion:

This study suggests hospital nurses successfully navigate an approach to hospital end-of-life nursing care, represented as a ‘harbour’, which facilitates transitioning from ‘stormy’ treatment to calm end-of-life care and death.

In England, figures from 2017 show that 81% of people aged 75 years and older had at least one hospital admission in their last year of life (Public Health England (PHE), 2020). In other countries, between 52% (in France) and 76% (in Austria, Slovenia and Israel) of the population aged 66-80 had at least one hospital admission in the last year of life (Overbeek et al, 2017). As the populations of the UK and other European countries age, the use of health services is predicted to increase among those aged 65-80 (Rechel et al, 2009). In England, the figure for hospital admissions in the last year of life had been dropping before the pandemic, but there were still 227 272 deaths in hospitals in England in 2017 (PHE, 2019), indicating that palliative and end-of-life care continues to be important in the hospital setting.

Register now to continue reading

Thank you for visiting British Journal of Nursing and reading some of our peer-reviewed resources for nurses. To read more, please register today. You’ll enjoy the following great benefits:

What's included

  • Limited access to clinical or professional articles

  • Unlimited access to the latest news, blogs and video content