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Patients' experiences of living with multiple myeloma

23 January 2020
Volume 29 · Issue 2

Abstract

Background:

Multiple myeloma is a B-cell haematological malignancy characterised by uncontrolled plasma cell proliferation. Patients with the disease often undergo periods of remission followed by multiple relapses. Understanding patients' experience of living with this chronic condition is key to providing effective patient-centred care.

Aims:

This qualitative descriptive study explored the experiences of patients living with multiple myeloma.

Methods:

A purposive sample of 6 patients was used. Data were collected using in-depth unstructured interviews and analysed using Colaizzi's (1978) thematic framework.

Findings:

The emergent themes included: information and communication; treatment and symptom burden; the importance of support from family/friends and professional help; psychosocial elements of survivorship.

Conclusion:

The complex symptoms of multiple myeloma need to be treated holistically to manage the unpredictable nature of this disease.

Multiple myeloma is a malignant proliferation of plasma cells. Its clinical manifestations include bone pain due to lytic lesions (soft spots in the bones that can increase the risks of painful fractures), anaemia, renal insufficiency, hypercalcaemia, immunodeficiency and increased susceptibility to infection (Colson, 2015). Each year about 5700 cases are diagnosed in the UK (Cancer Research UK, 2020), 32 000 cases in the USA (American Cancer Society, 2018), and 352 in the Republic of Ireland (National Cancer Registry Ireland (NCRI), 2018). It is a relapsing-remitting cancer resulting in periods during which symptoms need to be treated, followed by intervals during which treatment is not necessary (Rajkumar and Kumar, 2016; Multiple Myeloma Ireland, 2017).

There are several treatment options for patients diagnosed with multiple myeloma. In most cases, these can induce long intervals without any symptoms of the disease, allowing patients to have a reasonable quality of life. Consequently, multiple myeloma can be considered to be a chronic condition, where the aim of treatment is not to cure the disease but to control its symptoms (Anticancer Fund and the European Society for Medical Oncology, 2017). Survivorship has become a reality for some patients, with the overall survival at 5 years reaching more than 53% (National Cancer Registry Ireland, 2018).

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