References

Abbott P, Happé FG, Charlton RA. Exploratory study of executive function abilities across the adult lifespan in individuals receiving an ASD diagnosis in adulthood. J Autism Dev Disord. 2018; 48:(12)4193-4206 https://doi.org/10.1007/s10803-018-3675-x

Alabaf S, Gillberg C, Lundström S Physical health in children with neurodevelopmental disorders. J Autism Dev Disord. 2019; 49:(1)83-95 https://doi.org/10.1007/s10803-018-3697-4

American Psychiatric Association. Diagnostic criteria for 299.00 autism spectrum disorder. 2013. https://www.cdc.gov/ncbddd/autism/hcp-dsm.html (accessed 8 August 2022)

Baron-Cohen S, Scott FJ, Allison C Autism spectrum prevalence: a school-based UK population study. Br J Psychiatry. 2019; 194:(6)500-509 https://doi.org/10.1192/bjp.bp.108.059345

Bilder D, Botts EL, Smith KR Excess mortality and causes of death in autism spectrum disorders: a follow up of the 1980s Utah/UCLA autism epidemiologic study. J Autism Dev Disord. 2013; 43:(5)1196-1204 https://doi.org/10.1007/s10803-012-1664-z

Calleja S, Islam FMA, Kingsley J, McDonald R. The disparities of healthcare access for adults with autism spectrum disorder: protocol for a systematic review. Medicine (Baltimore). 2019; 98:(7) https://doi.org/10.1097/MD.0000000000014480

Cook DA, Levinson AJ, Garside S, Dupras DM, Erwin PJ, Montori VM. Instructional design variations in internet-based learning for health professions education: a systematic review and meta-analysis. Acad Med. 2010; 85:(5)909-22 https://doi.org/10.1097/ACM.0b013e3181d6c319

Crocker AF, Smith SN. Person-first language: are we practicing what we preach?. J Multidiscip Healthc. 2019; 12:125-129 https://doi.org/10.2147/JMDH.S140067

Davis D, Davis N. Selecting educational interventions for knowledge translation. CMAJ. 2010; 182:(2)E89-93 https://doi.org/10.1503/cmaj.081241

Department of Health. Estimating prevalence of autism spectrum disorders (ASD) in the Irish population: a review of data sources and epidemiological studies. 2018. https://tinyurl.com/4r7tjcea (accessed 8 August 2022)

de Vries M, Cader S, Colleer L University students' notion of autism spectrum conditions: A cross-cultural study. J Autism Dev Disord. 2020; 50:(4)1281-1294 https://doi.org/10.1007/s10803-019-04343-z

Gillberg C, Billstedt E. Autism and Asperger syndrome: coexistence with other clinical disorders. Acta Psychiatr Scand. 2000; 102:(5)321-30 https://doi.org/10.1034/j.1600-0447.2000.102005321.x

Health Service Executive. Report of the review of the Irish health services for individuals with autism spectrum disorders. 2018. https://tinyurl.com/5bkyy284 (accessed 8 August 2022)

Hirvikoski T, Mittendorfer-Rutz E, Boman M, Larsson H, Lichtenstein P, Bölte S. Premature mortality in autism spectrum disorder. Br J Psychiatry. 2016; 208:(3)232-238 https://doi.org/10.1192/bjp.bp.114.160192

Jang J, Dixon DR, Tarbox J, Granpeesheh Kornack J, de Nocker Y. Randomized trial of an eLearning program for training family members of children with autism in the principles and procedures of applied behavior analysis. Res Autism Spectr Disord. 2012; 6:(2) https://doi.org/10.1016/j.rasd.2011.11.004

Jolly AA. Handle with care: top ten tips a nurse should know before caring for a hospitalized child with autism spectrum disorder. Pediatr Nurs. 2015; 41:(1)11-22

Kenny L, Hattersley C, Molins B, Buckley C, Povey C, Pellicano E. Which terms should be used to describe autism? Perspectives from the UK autism community. Autism. 2016; 20:(4)442-462 https://doi.org/10.1177/1362361315588200

Kern DE, Thomas PA, Howard DM, Bass BE. Curriculum development for medical education a six-step approach.Baltimore (MD): The Johns Hopkins University Press; 1998

Kitson-Reynolds E, Kitson W, Humphrys K. Living with autism: what's your superpower? A personal reflection. British Journal of Midwifery. 2015; 23:(11)808-814 https://doi.org/10.12968/bjom.2015.23.11.808

Livingston LA, Happé F. Conceptualising compensation in neurodevelopmental disorders: reflections from autism spectrum disorder. Neurosci Biobehav Rev. 2017; 80:729-742 https://doi.org/10.1016/j.neubiorev.2017.06.005

Mason D, Ingham B, Urbanowicz A A systematic review of what barriers and facilitators prevent and enable physical healthcare services access for autistic adults. J Autism Dev Disord. 2019; 49:(8)3387-3400 https://doi.org/10.1007/s10803-019-04049-2

Myers K, Schenkman M. Utilizing a curriculum development process to design and implement a new integrated clinical education experience. Journal of Physical Therapy Education. 2017; 31:(3)71-82 https://doi.org/10.1097/00001416-201731030-00014

National Institute for Health and Care Excellence. Autism spectrum disorder in adults: diagnosis and management. Clinical guideline CG142. 2021a. https://www.nice.org.uk/guidance/cg142 (accessed 8 August 2022)

National Institute for Health and Care Excellence. Clinical guideline CG170. Autism spectrum disorder in under 19s: support and management. 2021b. https://www.nice.org.uk/guidance/cg170 (accessed 8 August 2022)

Nursing and Midwifery Board of Ireland. Nurse registration programmes standards and requirements. 2016. https://tinyurl.com/27khdmpz (accessed 8 August 2022)

Prideaux D. ABC of learning and teaching in medicine: curriculum design. BMJ. 2003; 326:(7383)268-270 https://doi.org/10.1136/bmj.326.7383.268

Russ V, Kovshoff AH, Brown T, Abbott P, Hadwin J. Exploring the role of empathy in understanding the social-cognitive profile for individuals referred for autism spectrum disorders assessment in adulthood. J Autism Dev Disord. 2018; https://doi.org/10.1007/s10803-018-3693-8

Shafiqa MA, Suba S, Manikkavasaghar T. Improving quality care for children with autism spectrum disorders in doctor's office or outpatient clinics. Journal of Pregnancy and Child Health. 2016; 3 https://doi.org/10.4172/2376-127X.1000253

Simpson S. Creating accessible healthcare environments for people with autism. Nursing Times. 2020; 116:(1)47-49

World Health Organization. 6A02 Autism spectrum disorder. 2022. https://tinyurl.com/v3utxcn2 (accessed 8 August 2022)

Zerbo O, Massolo ML, Qian Y, Croen LA. A study of physician knowledge and experience with autism in adults in a large integrated healthcare system. J Autism Dev Disord. 2015; 45:(12)4002-4014 https://doi.org/10.1007/s10803-015-2579-2

Zerbo O, Qian Y, Ray T Healthcare service utilization and cost among adults with autism spectrum disorder in a US Integrated healthcare System. Autism in Adulthood. 2019; 1:(1)27-36 https://doi.org/10.1089/aut.2018.0004

Developing an e-learning curriculum to educate healthcare staff in the acute hospital setting about autism

22 September 2022
Volume 31 · Issue 17

Abstract

When attending acute hospital settings, autistic children and adults rely on health professionals and ancillary staff to interact with them appropriately to facilitate accurate diagnoses and management of health concerns. Health outcomes for autistic people are adversely affected by comorbidities as well as difficulties in accessing and navigating acute healthcare environments. These factors demonstrate a need to develop targeted education for healthcare staff working in the acute hospital setting. This article discusses the background to the project, including the results of a literature review that highlighted some of the difficulties this patient group experiences in accessing health care. It discusses the development and evaluation of an e-learning education programme for healthcare staff working in an acute hospital setting using Kern et al's (1998) six-step approach to curriculum development. Staff reported a desire to learn more about autism and how to make patient consultations and experiences more accessible and productive. It was acknowledged that there are many undiagnosed autistic adults navigating the acute health system and it is anticipated that the e-learning programme will assist staff in identifying and meeting their needs. During research with an autism advocacy group, there was a clear recommendation for the use of the term ‘autistic person’ rather than ‘person with autism’, which is reflected in the resulting education programme and this article.

Autistic children and adults who attend at an acute hospital rely on health professionals and other staff such as receptionists to interact with them appropriately to facilitate an accurate diagnosis and manage their health concerns. If staff do not have these skills, this can result in suboptimal care (Shafiqa et al, 2016). Mason et al (2019) stated that the health outcomes for autistic people are adversely affected by comorbidities as well as difficulties in accessing and navigating acute healthcare environments. These factors demonstrate a need to develop targeted education for healthcare staff working in the acute hospital setting.

This article focuses on the development and evaluation of an e-learning education programme for staff working in an acute hospital setting to increase and enhance access to health care for autistic adults and children. Kern et al's (1998) six-step approach to curriculum development was applied to the project. This method of developing a curriculum is explained and the results of the process will be discussed in the context of improving care provision and accessibility for autistic patients within the acute setting.

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