References

Person-centred care: from ideas to action. 2014. https://tinyurl.com/ykrm7dj8 (accessed 20 February 2025)

Alessy SA, Davies E, Rawlinson J Clinical nurse specialists and survival in patients with cancer: the UK National Cancer Experience Survey. BMJ Support Palliat Care. 2024; 14:e1208-e1224 https://doi.org/10.1136/bmjspcare-2021-003445

Braun V, Clarke V Using thematic analysis in psychology. Qual Res Psychol. 2006; 3:(2)77-101 https://doi.org/10.1191/1478088706qp063oa

Carvajal A, Haraldsdottir E, Kroll T Barriers and facilitators perceived by registered nurses to providing person-centred care at the end of life. A scoping review. IPDJ. 2019; 9:(2)1-22 https://doi.org/10.19043/ipdj.92.008

Care Quality Commission. Key lines of enquiry for healthcare services. 2022. https://tinyurl.com/mt3nvmyn (accessed 20 February 2025)

Creswell JW Research design: qualitative, quantitative, and mixed methods approaches, 4th edn. : Sage Publication; 2014

Cribb A, Woodcock T Measuring with quality: the example of person-centred care. J Health Serv Res Policy. 2022; 27:(2)151-156 https://doi.org/10.1177/13558196211054278

Department of Health. High quality care for all. NHS next stage review final report. 2008. https://tinyurl.com/5at3t2vy (accessed 20 February 2025)

Helping measure person-centred care:A review of evidence about commonly used approaches and tools used to help measure person-centred care. 2014. https://tinyurl.com/yftrns74 (accessed 20 February 2025)

Dewing J, McCormack B Editorial: tell me, how do you define person-centredness?. J Clin Nurs. 2017; 26:(17-18)2509-2510 https://doi.org/10.1111/jocn.13681

Dulko D, Pace CM, Dittus KL Barriers and facilitators to implementing cancer survivorship care plans. Oncol Nurs Forum. 2013; 40:(6)575-580 https://doi.org/10.1188/13.ONF.575-580

Ekman I, Swedberg K, Taft C Person-centered care-ready for prime time. Eur J Cardiovasc Nurs. 2011; 10:(4)248-251 https://doi.org/10.1016/j.ejcnurse.2011.06.008

Esmaeili M, Ali Cheraghi M, Salsali M Barriers to patient-centered care: a thematic analysis study. Int J Nurs Knowl. 2014; 25:(1)2-8 https://doi.org/10.1111/2047-3095.12012

Evén G, Spaak J, von Arbin M Health care professionals’ experiences and enactment of person-centered care at a multidisciplinary outpatient specialty clinic. J Multidiscip Healthc. 2019; 12:137-148 https://doi.org/10.2147/JMDH.S186388

Report of the Mid Staffordshire NHS Foundation Trust Public Inquiry: Executive Summary. 2013. https://tinyurl.com/59mcb2ny (accessed 20 February 2025)

Giusti A, Nkhoma K, Petrus R The empirical evidence underpinning the concept and practice of person-centred care for serious illness: a systematic review. BMJ Glob Health. 2020; 5:(12) https://doi.org/10.1136/bmjgh-2020-003330

General Medical Council. The duties of medical professionals registered with the General Medical Council. 2025. https://tinyurl.com/4avx69th (accessed 20 February 2025)

Hasnain M, Connell KJ, Menon U, Tranmer PA Patient-centered care for Muslim women: provider and patient perspectives. J Womens Health. 2011; 20:(1)73-83 https://doi.org/10.1089/jwh.2010.2197

The Health Foundation. The MAGIC programme: evaluation. 2013. https://tinyurl.com/yy9depbc (accessed 20 February 2025)

The Health Foundation. Person-centred care made simple:What everyone should know about person-centred care. 2016. https://tinyurl.com/ms5nn6t2 (accessed 20 February 2025)

Health Research Authority. Is my study research?. 2022. https://tinyurl.com/54yc3ecr (accessed 20 February 2025)

Carl Rogers’ person-centered approach. 2015. https://www.psychologytoday.com/gb/blog/what-doesnt-kill-us/201503/carl-rogers-person-centered-approach (accessed 26 February 2025)

Karliner LS, Hwang ES, Nickleach D, Kaplan CP Language barriers and patient-centred breast cancer care. Patient Educ Couns. 2011; 84:(2)223-8 https://doi.org/10.1016/j.pec.2010.07.009

Khankeh HR, Vojdani R, Saber M, Imanieh M How do cancer patients refuse treatment? A grounded theory study. BMC Palliat Care. 2023; 22:(1) https://doi.org/10.1186/s12904-023-01132-5

The King's Fund. From vision to action: making patient-centred care a reality. 2012. https://www.kingsfund.org.uk/insight-and-analysis/reports/vision-action-making-patient-centred-care-reality (accessed 26 February 2025)

Kirkpatrick S, Campbell K, Harding S A survey of quality-of-life tools used in the routine care of patients with multiple myeloma. Br J Nurs. 2023; 32:(5)S10-S14 https://doi.org/10.12968/bjon.2023.32.5.S10

Kitson A, Marshall A, Bassett K, Zeitz K What are the core elements of patient-centred care? A narrative review and synthesis of the literature from health policy, medicine and nursing. J Adv Nurs. 2013; 69:(1)4-15 https://doi.org/10.1111/j.1365-2648.2012.06064.x

Clinical nurse specialists: leaders in improving patient outcomes. 2021. https://tinyurl.com/5n6nxvz6 (accessed 20 February 2025)

Lamb BW, Taylor C, Lamb JN Facilitators and barriers to teamworking and patient centeredness in multidisciplinary cancer teams: Findings of a national study. Ann Surg Oncol. 2013; 20:(5)1408-1416 https://doi.org/10.1245/s10434-012-2676-9

Laird EA, McCance T, McCormack B, Gribben B Patients’ experiences of in-hospital care when nursing staff were engaged in a practice development programme to promote person-centredness: A narrative analysis study. Int J Nurs Stud. 2015; 52:(9)1454-1462 https://doi.org/10.1016/j.ijnurstu.2015.05.002

Lavender V, Foulkes M, Taylor C, Bell D Reporting meaningful personalised care data. Br J Nurs. 2022; 31:(17) https://doi.org/10.12968/bjon.2022.31.17.S3

Leplege A, Gzil F, Cammelli M Person-centredness: conceptual and historical perspectives. Disabil Rehabil. 2007; 29:(20-21)1555-1565 https://doi.org/10.1080/09638280701618661

Leukaemia Care. Left to #Watch, Wait and Worry. 2025. https://tinyurl.com/5n2z5pra (accessed 23 February 2025)

Macmillan Cancer Support. Holistic needs assessments. 2023. https://tinyurl.com/399awbrf (accessed 20 February 2025)

McCormack B Person-centred care and measurement: the more one sees, the better one knows where to look. J Health Serv Res Policy. 2022; 27:(2)85-87 https://doi.org/10.1177/13558196211071041

McCormack B, McCance TV Development of a framework for person-centred nursing. J Adv Nurs. 2006; 56:(5)472-9 https://doi.org/10.1111/j.1365-2648.2006.04042.x

Moore J, McQuestion M The clinical nurse specialist in chronic diseases. Clin Nurse Spec. 2012; 26:(3)149-163 https://doi.org/10.1097/NUR.0b013e3182503fa7

National Cancer Action Team. Excellence in cancer care:the contribution of the Clinical Nurse Specialist. 2010. https://tinyurl.com/48ycnc9x (accessed 20 February 2025)

National Institute for Health and Care Excellence. Patient experience in adult NHS services: improving the experience of care for people using adult NHS services. 2012. https://tinyurl.com/5n8828rd (accessed 20 February 2025)

NHS England. MDT development-working toward an effective multidisciplinary/multiagency team. 2014. https://tinyurl.com/2pfe8fw8 (accessed 20 February 2025)

NHS England. National cancer patient experience survey. 2022. https://tinyurl.com/32zuedma (accessed 23 February 2025)

National Voices. Person centred care 2020: Call and contributions from health and social care charities. 2014. https://tinyurl.com/yt3kbcwn (accessed 20 February 2025)

Nilsson A, Edvardsson D, Rushton C Nurses’ descriptions of person-centred care for older people in an acute medical ward—on the individual, team and organisational levels. J Clin Nurs. 2019; 28:(7-8)1251-1259 https://doi.org/10.1111/jocn.14738

Nursing and Midwifery Council. Person-centred care. Caring with confidence: the Code in action. 2020. https://tinyurl.com/3yuepsyt (accessed 20 February 2025)

50 years of NHS inquiries: why they matter and what we can learn from them. 2019. https://tinyurl.com/y5xermer (accessed 20 February 2025)

Prato L, Lindley L, Boyles M Empowerment, environment and person-centred care:A qualitative study exploring the hospital experience for adults with cognitive impairment. Dementia. 2019; 18:(7-8)2710-2730 https://doi.org/10.1177/1471301218755878

Rathert C, Wyrwich MD, Boren SA Patient-centered care and outcomes: a systematic review of the literature. Med Care Res Rev. 2013; 70:(4)351-379 https://doi.org/10.1177/1077558712465774

A theory of therapy, personality, and interpersonal relationships, as developed in the client-centred framework. 1959. https://archive.org/details/psychologyastudy017916mbp/page/n5/mode/2up (accessed 26 February 2025)

Ross H, Tod AM, Clarke A Understanding and achieving person-centred care: the nurse perspective. J Clin Nurs. 2015; 24:(9-10)1223-1233 https://doi.org/10.1111/jocn.12662

Santana MJ, Manalili K, Jolley RJ How to practice person-centred care: A conceptual framework. Health Expect. 2018; 21:(2)429-440 https://doi.org/10.1111/hex.12640

Taylor C, Finnegan-John J, Green JS ‘No decision about me without me’ in the context of cancer multidisciplinary team meetings: a qualitative interview study. BMC Health Serv Res. 2014; 14:488-499

Transforming Cancer Services Team. London personalised cancer care. Key performance indicators. 2020. https://tinyurl.com/29nud9ec (accessed 20 February 2025)

Younas A, Inayat S, Masih S Nurses’ perceived barriers to the delivery of person-centred care to complex patients:A qualitative study using theoretical domains framework. J Clin Nurs. 2023; 32:(3-4)368-381 https://doi.org/10.1111/jocn.16245

Haematology CNSs’ understanding and application of person-centred care: a pilot qualitative evaluation

06 March 2025
Volume 34 · Issue 5
Nurse taking notes while speaking with a patient

Abstract

Aim:

To explore the experiences of haematology clinical nurse specialists (CNSs) when delivering person-centred care (PCC). Particularly, the barriers and facilitators to its delivery, the specialists’ understanding of PCC, and how they evaluate its success.

Methods:

A total of eight participants were interviewed using semi-structured interviews that were conducted virtually. The interview questions generated qualitative data to explore the experiences of the haematology CNS team. All interviews were recorded, transcribed, and stored in a password-protected folder. The data were then thematically analysed and coded to generate the findings.

Findings:

All participants reported a shared understanding of PCC, supporting the current theories and literature surrounding it. They raised factors that acted as both facilitators and barriers towards the delivery of PCC. Additionally, the research identified a lack of awareness and use of methods to evaluate the effectiveness of the care the CNSs delivered.

Conclusions:

This study offers an initial exploration into the experiences of haematology CNSs delivering PCC. This understanding could lead to the removal of barriers, thus enhancing the patient experience and quality of care. Recommendations are made to evaluate PCC through involving patients to share their views on what successful PCC means to them, and their ideas on how their nursing team might achieve this.

Person-centred care (PCC) has become a key objective for national policy and its regulators to improve the quality of care and clinical outcomes (Department of Health, 2008; Care Quality Commission (CQC), 2022). A variety of terms have been discussed such as ‘patient-centred care’ (Rathert et al, 2013) and ‘personalisation’, which Kitson et al (2013) described as care based on the patient's physical and emotional needs. These terms embody an approach that focuses on seeing patients, caregivers and families as participants in their care rather than as beneficiaries. However, PCC is better thought to encapsulate the ‘whole person’ (Ekman et al, 2011).

Nilsson et al (2019) found that there was a strong consensus in the nurses’ understanding of PCC, both individually and within the team. They acknowledged the importance of involving patients and their carers in matters surrounding their care decisions. This concept is echoed in a similar study by Prato et al (2019) as health professionals reported that PCC requires valuing and empowering the patient. Considering this research, within this study, the term ‘person-centred care’ (PCC) will be used, reflecting seeing the patient as a whole person and not reducing him or her to just their symptoms and/or disease, as discussed by Ekman (2011).

Register now to continue reading

Thank you for visiting British Journal of Nursing and reading some of our peer-reviewed resources for nurses. To read more, please register today. You’ll enjoy the following great benefits:

What's included

  • Limited access to clinical or professional articles

  • Unlimited access to the latest news, blogs and video content